CSF Leak Association

Every day, people with CSF leaks face severe pain, disability and isolation. Your support funds faster diagnosis, life-changing treatment, specialist support and vital research to prevent harm, end needless suffering and transform lives for good.

We're a UK charity supporting everyone affected by CSF leaks. Through trusted information, specialist support, advocacy and awareness, we work with experts to advance research, speed up diagnosis, improve treatment and create a future where no one is left to suffer needlessly from a CSF leak.

Why Your Support MattersA CSF leak can happen to anyone at any time. Thousands of people across the UK with CSF leaks face severe pain, disability and uncertainty, often enduring months or years of misdiagnosis before receiving the treatment they need.
Symptoms worsen when sitting or standing upright and improve only when lying flat. As a result, people with CSF leaks can become housebound or bedbound, unable to work, study, care for their families or take part in everyday life. The impact on physical health, mental wellbeing, education, employment and family life is devastating.
The good news is that CSF leaks are curable when recognised, diagnosed and treated promptly but there is limited awareness of the condition and a shortage of specialist expertise to diagnose and treat them.
Whether you run, walk, cycle, swim or create your own challenge, every step, mile and pound raised helps change lives. Your fundraising supports vital research and helps people affected by CSF leaks access faster diagnosis, specialist support and life-changing treatment.
Ready to make a difference? 
Start a fundraiser, join an event or make a donation today.
Join Team CSF leak and help us stand up for those who can't.
Together, we can end needless suffering, prevent harm and transform lives for good.
What is a CSF leak?
Watch our one-minute animation to learn how CSF leaks affect people's lives and why your support matters.
For more information, visit csfleak.uk