Childhood Tumour Trust

Childhood Tumour Trust is a small charity with a big heart. We support children and young people to the age of 30, their families and carers. We are there from diagnosis, providing important literature for parents and children and workshops to help with the feelings around this time. We also de-mystify NF1 and help to make the diagnosis a little less scary. We aim to bring people together so that they do not have to face anything on their own. We have a strong online community and bring people together face to face when we can through our social events such as trips to Theme Parks. We have annual camps for those aged 12 - 17 and a residential trip for those age 18 - 30, organised by our CTT Young Ambassadors. Throughout the year we hold regular online activies through Zoom. This includes Arts & Crafts, Sign Language, Cookery, and parties. This is so valuable to the children, as they learn that they are not on their own and make friends. As many struggle in school and for those who are home taught it is an important social time for them. We work hard to raise awareness of NF1 with the public and healthcare professionals up to government level.