Alex, The Leukodystrophy Charity

The only charity in the UK which provides information and invaluable support to anyone affected by leukodystrophy.

Raise money in aid of Alex, The Leukodystrophy Charity

GiveWheel provides a platform for individuals and companies to donate to, and fundraise in aid of Alex, The Leukodystrophy Charity. GiveWheel does not represent the charity or its mission. See how GiveWheel operates for more information.

🎂 Birthday 🎉 Events 🕯️ Memorial 🚴 Cycling

More inspiration

About Alex, The Leukodystrophy Charity

Charity ID: 1106008

Charity Category: Health & Disability Website: http://www.alextlc.org

Neurological conditions Rare diseases Health & Medical

Established in 2004, Alex TLC is an internationally recognised centre of excellence for those affected by a Leukodystrophy. We are the only charity in the UK that provides invaluable support for anyone with a Leukodystrophy, their families, and carers. Our aims Enable more patients, families and carers to access vital support and information Connect patients and families to others living with Leukodystrophy Raise awareness and improve public and professional education through events and campaigns Promote research to find better treatments, enable early diagnosis and increase life expectancy

Your Impact

Our support services are designed to help individuals and families better cope with the unimaginable life changes that come with a leukodystrophy diagnosis. We promote the social and emotional well-being of our beneficiaries by tackling loneliness, addressing mental health challenges, and fostering community connections. We address the knowledge gap by providing high quality condition related information and resources for both our beneficiaries and health professionals. Our ongoing support extends to the entire family, loved ones, and caregivers, because we know from experience that it's not just the affected person who needs support. Our support is available in-person at home, by phone, and online, ensuring everyone can access the necessary help for managing their condition.

£10

distribution of vital information to someone newly diagnosed with a leukodystrophy

£50

two hours of one to one telephone or zoom support

£100

a dedicated support session at home to address fears, concerns and questions from the whole family

Start Charity Relationship

Register your business on GiveWheel for free. Add Alex, The Leukodystrophy Charity to your GiveWheel dashboard to centrally track all activity across your organisation. Monitor fundraising progress, engagement, milestones, and measurable impact in one place.

Talk to the Team

Want to support Alex, The Leukodystrophy Charity with a one-off donation? Donate here →