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Wolfram Syndrome UK

WSUK as a national charity help fund research and provide support for those affected by the condition and their families. We are a patient orientated organisation; who take pride in helping to offer high quality support services. We raise funds to promote research, further our support services and offer opportunities for those affected.

About Wolfram Syndrome UK


Tags: Rare diseases Health & Medical

Wolfram Syndrome UK is a patient orientated organisation; who take pride in helping to offer high quality support services, facilitating access to the WS specialist clinics operated by NHS England. During these clinics those affected and their families can be seen by medical experts to help maintain a good quality of life and receive the most up to date treatments and advice, which is then shared back to a patient’s local care team.

At the very heart of our charity’s soul is a driving force, a passion and vision to improve the lives of those with Wolfram Syndrome.

Your Impact

Every person affected by WS and their families should receive high quality support services where possible
Every person affected by WS can access the WS specialist medical clinics
WSUK will endeavour to raise awareness of this ultra-rare condition, in the hope of enabling early diagnosis
WSUK will raise funds to promote research, further our support services and offer opportunities for those affected
WSUK will promote research to aid better understanding of this complex condition which may lead to better treatments and hope for the future
WSUK will endeavour to provide peer to peer mentoring, connections with ‘local’ families and a helpful voice when it is needed.
WSUK will provide an annual conference for those affected, their families, medical professionals and support teams to receive information from the UK and around the world
WSUK will endeavour to provide funding for fun/social activities for families and individuals. Living without limits!

£5

provides much needed media stimulation for WS children at clinic

£10

will provide toys for WS children at clinic

£50

will fund the day attendance for a WS individual at the annual WS Conference