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SarcoidosisUK

SarcoidosisUK (previously SILA) was founded in 1997 and has been helping people with sarcoidosis ever since. SarcoidosisUK is a charity funded solely from personal donations – of both time and money. Sarcoidosis is a rare disease and suffers from poor quality information, low levels of support and almost no research into finding a cure. SarcoidosisUK works to change that.

About SarcoidosisUK


Tags: Rare diseases Health & Medical Advocacy, awareness & campaigning

SarcoidosisUK have four main goals – to provide quality information, to provide meaningful support, to increase awareness, and to fund research aimed towards understanding sarcoidosis better, improving treatments, and making a positive difference to people’s lives.

Your Impact

£648k Research Spending to Date
80+ Consultant Directory Entries
3,500+ SarcoidosisUK Nurse Helpline Calls
14 SarcoidosisUK Support Groups
8,000+ Members in our Online Private Support Group

We work with top sarcoidosis specialists to write detailed information pages and leaflets. We have different support options so you can choose what works best for you; you can speak to a specialist nurse, you can meet others affected by sarcoidosis at one of our support groups or chat virtually in our online forums. We know it can be hard to find a doctor who understands sarcoidosis so we’ve created a recommended consultant list and we fund research to help improve outcomes for patients.