Walk for Freya & Caoimhe
Walk for Freya & Caoimhe

Declan McGahan

11 Aug 2025 - 08 Nov 2025

Walk for Freya & Caoimhe

🌄 Walking the Cuilcagh Boardwalk Trail – Saturday 1st November 2025

We’re taking on the stunning Cuilcagh Boardwalk Trail to raise awareness and funds for Myotonic Dystrophy – a rare, life-limiting condition that needs more attention, research, and support.

This cause is deeply personal to us. Freya and Caoimhe were both born with Congenital Myotonic Dystrophy, a severe form of the condition. Every day, they face challenges that most of us can’t imagine – yet they continue to face life with courage, determination, and smiles that light up the room.

What is Myotonic Dystrophy type 1 (DM1)?
DM1 is a genetic muscle-wasting condition that affects skeletal muscles used for movement, as well as the heart, lungs, and digestive system. It’s rare, progressive, and currently has no cure. But with more awareness and funding, there is hope for better treatments – and one day, a cure.

We’re walking for Freya, Caoimhe, and everyone living with Myotonic Dystrophy.
Every step we take is a step towards change.

We’re proud to support three amazing charities who have given us knowledge, comfort, and hope

💙 Please support us – whether by donating, sharing our story, or joining us on the walk. Together, we can make a difference.

Supporting

Muscular Dystrophy UK
Muscular Dystrophy UK

Health | 205395

33.3%

Muscular Dystrophy UK (previously known as the Muscular Dystrophy Campaign) is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions.

Cure Myotonic Dystrophy UK Charity
Cure Myotonic Dystrophy UK Charity

Health | 1191217

33.3%

Supporting families living with Myotonic Dystrophy, raising awareness and facilitating research.

Myotonic Dystrophy Support Group
Myotonic Dystrophy Support Group

Health | 1134499

33.4%

Myotonic Dystrophy Support Group is a registered charity, founded by Margaret Bowler in 1987, run by volunteers and dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy.

Supporters

130

£4,004.75

+ £501.25 Gift Aid

130 supporters

Charities Supporting

Muscular Dystrophy UK
33%
Cure Myotonic Dystrophy UK Charity
33%
Myotonic Dystrophy Support Group
33%