Event run by
Nick Apperley
31 Dec 2028
Nick - Living Life with MND....
1930
Keep a fire burning in your eyes
Pay attention to the open skies
You never know what will be coming down
from For a Dancer by Jackson Browne
-------
Life is full of opportunities, some you welcome, others not, but my MND diagnosis has given me and us and opportunity to embrace MND, advocating for MND and fundraising to support those living with MND now and to fund research to find treatments and a cure.
In just over three years we are thrilled to have reached our target of £100,000 thank you all for your generous support and donations. Now for a real challenge - £250,000
The brilliant Suffolk to Sennen in June 2024 seems a long time ago and started it all off, with over 300 people waving us off at the 'Grand depart' and 150 cyclists and social supporters we raised over £30,000. Followed by a tremendous Summer Ball in Ufford raising £10,000
2025 was a full year, Jill and I kept up our plan to do something every month and with weekends away, brilliant tow weeks on the Hebrides, a family week in France, time in our beloved Lago Maggiore and north Norfolk.
Jill and I had the privilege of representing the MND community by attending, speaking and giving our thoughts at one of the My Name'5 Doddie Foundation's bi-annual Scientific Advisory meetings and in June joined the Doddie's Lion challenge for their last day cycling through the Wicklow gap to deliver the rugby ball for the Brithish Lions v Argentina - an exciting and uplifting few day with some great people.
Fundraising continued with our Evening cycle and a much enjoyed Bingo & Band evening, Christmas fair and the much loved Ufford Crown Christmas carols.
2026 has been another active year. Sporting a Doddie Weir tartan kilt, the fantastic Nick's MND Ball at The Trafalgar Tavern in Greenwich was just the most incredible evening, filled with fun, love and generosity, raising over £40,000 it pushed us past our £100,000 target - what an occasion!
I am honoured to have been invited by My name'5 Doddie Foundation to join their Translational Research review panel, assessing funding research applications - not for my academic input, as I am sure you understand.
Our social time has been full of friends and time away with family, 10 days on Lago Maggiore and continuing our much enjoyed Bangor Boys & Girls & Jill twice a year long weekends. November will see us in Edinburgh at a Translational research review panel dinner and conference and Myname'5doddie annual anniversary dinner.
Two recent visits to the Rob Burrow centre and the incredible SITraN (Sheffield Institute for Translational Neuroscience) led by the incredible Professor Dame Pam Shaw were both inspiring and uplifting and an insight into the improvement in holistic care and research that is gaining a real understanding of the multi-faceted causes of this pernicious MND. There will be aa brighter future it just needs ongoing support and funding!
Our engagement with the MND community is a real opportunity and life enhancing, giving us some uplifting experiences and sense of purpose on our MND journey.
So now to reach £250,000 - your incredible support and generosity had helped us reach £100,000. We have plans for 2027, starting with Nick's MND Walk - a family day, taking us 13 miles from Felixstowe to Woodbridge, along the King's path on the King's birthday, the 19th June. It will be a day to relish.
This is our opportunity to be part of making a brighter future for those with MND. Please help us and be part of a a future without MND...
We are supporting:
• MND Association - to assist their work supporting and caring for MND sufferers, as well as invaluable research and future treatments
• My Name’5 Doddie Foundation - committed to helping improve the lives of individuals and families affected by MND, funding research to find a cure
. Challenging MND - who offer MND sufferers the opportunity to create amazing memories with their family and friends which will last for ever
If you would like to support me, Jill and our family to enable us to live the best and fullest life possible, which requires specialist equipment and alterations to our home, then please use this link to our Go Fund Me page: https://gofund.me/3d9bb09ae
Pay attention to the open skies
You never know what will be coming down
from For a Dancer by Jackson Browne
-------
Life is full of opportunities, some you welcome, others not, but my MND diagnosis has given me and us and opportunity to embrace MND, advocating for MND and fundraising to support those living with MND now and to fund research to find treatments and a cure.
In just over three years we are thrilled to have reached our target of £100,000 thank you all for your generous support and donations. Now for a real challenge - £250,000
The brilliant Suffolk to Sennen in June 2024 seems a long time ago and started it all off, with over 300 people waving us off at the 'Grand depart' and 150 cyclists and social supporters we raised over £30,000. Followed by a tremendous Summer Ball in Ufford raising £10,000
2025 was a full year, Jill and I kept up our plan to do something every month and with weekends away, brilliant tow weeks on the Hebrides, a family week in France, time in our beloved Lago Maggiore and north Norfolk.
Jill and I had the privilege of representing the MND community by attending, speaking and giving our thoughts at one of the My Name'5 Doddie Foundation's bi-annual Scientific Advisory meetings and in June joined the Doddie's Lion challenge for their last day cycling through the Wicklow gap to deliver the rugby ball for the Brithish Lions v Argentina - an exciting and uplifting few day with some great people.
Fundraising continued with our Evening cycle and a much enjoyed Bingo & Band evening, Christmas fair and the much loved Ufford Crown Christmas carols.
2026 has been another active year. Sporting a Doddie Weir tartan kilt, the fantastic Nick's MND Ball at The Trafalgar Tavern in Greenwich was just the most incredible evening, filled with fun, love and generosity, raising over £40,000 it pushed us past our £100,000 target - what an occasion!
I am honoured to have been invited by My name'5 Doddie Foundation to join their Translational Research review panel, assessing funding research applications - not for my academic input, as I am sure you understand.
Our social time has been full of friends and time away with family, 10 days on Lago Maggiore and continuing our much enjoyed Bangor Boys & Girls & Jill twice a year long weekends. November will see us in Edinburgh at a Translational research review panel dinner and conference and Myname'5doddie annual anniversary dinner.
Two recent visits to the Rob Burrow centre and the incredible SITraN (Sheffield Institute for Translational Neuroscience) led by the incredible Professor Dame Pam Shaw were both inspiring and uplifting and an insight into the improvement in holistic care and research that is gaining a real understanding of the multi-faceted causes of this pernicious MND. There will be aa brighter future it just needs ongoing support and funding!
Our engagement with the MND community is a real opportunity and life enhancing, giving us some uplifting experiences and sense of purpose on our MND journey.
So now to reach £250,000 - your incredible support and generosity had helped us reach £100,000. We have plans for 2027, starting with Nick's MND Walk - a family day, taking us 13 miles from Felixstowe to Woodbridge, along the King's path on the King's birthday, the 19th June. It will be a day to relish.
This is our opportunity to be part of making a brighter future for those with MND. Please help us and be part of a a future without MND...
We are supporting:
• MND Association - to assist their work supporting and caring for MND sufferers, as well as invaluable research and future treatments
• My Name’5 Doddie Foundation - committed to helping improve the lives of individuals and families affected by MND, funding research to find a cure
. Challenging MND - who offer MND sufferers the opportunity to create amazing memories with their family and friends which will last for ever
If you would like to support me, Jill and our family to enable us to live the best and fullest life possible, which requires specialist equipment and alterations to our home, then please use this link to our Go Fund Me page: https://gofund.me/3d9bb09ae
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Donated to this page
£ 61,663.00
Summary
Total Raised
£103,053.62
Gift Aid
+£12,372.56
